Fundraising event to be held for Elysha

Elysha Robertson suffers from a rare medical condition.
Elysha Robertson suffers from a rare medical condition.

A fundraising Zumbathon is to be held in aid of Inverallochy teenager Elysha Robertson who suffers from a rare medical condition.

Elysha’s family has been at the forefront of a campaign to have her medical treatment reinstated and have launched a petition to NHS Grampian asking them to provide the treatment they believe she needs to walk again.

Elysha, who has suffered from a rare medical condition since she was two years old, is unable to breathe unaided and is only able to communicate through sign language using her feet.

The 13-year-old had previously been diagnosed as having Guillain-Barre Syndrome and was given Intravenous Immunoglobulin Therapy (IVIG), which Elysha’s family says had a hugely positive impact on her health.

However, when she moved back to the North-east, Elysha was diagnosed with a different medical condition - Brown-Vialetto-Van Laere syndrome - and was given different treatment.

The petition set up by Elysha’s family, which has now collected more than 4,000 signatures, calls on First Minister Nicola Sturgeon to intervene and for NHS Grampian to reinstate the IVIG treatment.

As a show of support, a Zumbathon crew are to hold a fundraising event in Rosehearty next month.

The Zumbathon event which is being held for Elysha will be taking place on Friday, March 13, at Fordyce Street Hall in Rosehearty, with doors opening from 6.15pm.

Those wishing to take part can pay at the door.

Entry is £5 for adults and £2.50 for children and everyone is welcome head along and join in the fun.

Raffle donations are also appreciated.